Bilirakis Hosting Two Health Care Roundtables – Participants Announced
"Whether through medical devices or medicine, treatments for patients suffering from chronic and rare diseases are driven by the three D's: discovery on the ground level through basic science; development into a practical, usable, and marketable product; and delivery to the patients, so that the treatment may be utilized effectively," said Bilirakis.
"Significant impediments at each stage of the cycle render a disservice to 130 million Americans who suffer from a chronic condition. These roundtables will be the beginning of a conversation I want to have with patients, patient advocates, and health care providers. This is about people – the people who need more efficient and effective treatments more quickly, but do not have access to them. Together, we will work towards a path to cures."
The events are open to the media.
Patients and the Patient Perspective on August 19th will feature:
- Dr. Wayne Taylor on behalf of the Leukemia and Lymphoma Society;
- Dr. Samantha Lindsay, on behalf of the Alpha-1 Foundation;
- Mrs. Colleen Labbadia, on behalf of the Parent Project for Muscular Dystrophy;
- Mr. Gary Dassatti, on behalf of the ALS Association Florida Chapter; and
- Ms. Ashleigh Pike & Ms. Beth Pike, dysautonomia patient advocates.
Spurring Innovation, Advancing Treatments, and Incentivizing Investment on August 22nd will feature:
- Dr. Clifton Gooch, FAAN, Professor and Chair, Department of Neurology, USF Health Morsani College of Medicine, and Director, USF Neuroscience Collaborative, University of South Florida;
- Dr. Dave Morgan, the CEO and Director of USF's Byrd Alzheimer's Institute;
- Dr. Richard Finkel, Chief Neurologist at Nemour's Children's Hospital;
- Geary A. Havran, the President of NDH Medical, Inc., and Chairman of the Florida Medical Manufacturers Consortium;
- Dr. Thomas Sellers, Center Director and Executive Vice President for Moffit Cancer Center; and
- Lisa Novorska, CFO for Rochester Electro-Medical, Inc.
For more information, visit Bilirakis.house.gov/cures
Tuesday, August 19th, 2014
1:30 pm
The Bethany Center
21st Century Cures Roundtable: Patients and the Patient Perspectives
18150 Bethany Center Drive
Lutz, FL 33558
Friday, August 22nd, 2014
1:30 pm
The Bethany Center
21st Century Cures Roundtable: Spurring Innovation, Advancing Treatments, & Incentivizing Investment
18150 Bethany Center Drive
Lutz, FL 33558
Media RSVP: Ian Martorana, at (202) 225 5755 or Ian.Martorana@mail.house.gov