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Bipartisan Bilirakis Bill to Help Kids with Cancer Passes House

September 30, 2020
Press Release



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Bipartisan Bilirakis Bill to Help Kids with Cancer Passes House


As Pediatric Cancer Awareness Month draws to a close, Congressman Gus Bilirakis is proud to announce that the Creating Hope Reauthorization Act, which he co-authored with Congressman G.K. Butterfield, has passed the House.  This critical legislation reauthorizes the Priority Review Voucher (PRV) program for rare pediatric diseases for four more years.  The PRV incentivizes the development of therapies to treat rare pediatric diseases. An impressive 22 therapies have been approved for the treatment of 18 rare pediatric diseases since the PRV’s inception in 2012. However, pediatric cancer remains the number one disease that leads to the death of American children. While survival rates have improved for some types of pediatric cancers, thousands of children are lost to cancer each year and many more encounter life threatening complications related to harsh chemotherapies. Children have significantly fewer treatment options than adults and oftentimes must rely on treatment regimens developed for adults because pediatric-specific treatments simply do not exist.


Children are not little adults, and despite their significant need, pharmaceutical companies have had trouble developing treatments for pediatric cancer and rare diseases because of the small population and high cost of bringing these specific treatments to market,” said Congressman Bilirakis. “The PRV program has been an effective tool for incentivizing the development of better treatments for children with cancer. Our legislation makes sure this successful program continues, and I hope my colleagues in the Senate will expedite its passage.”