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Patients and providers offered insights into obstacles relating to the treatment of people living with Parkinson's, Alzheimer's and Amyotrophic lateral sclerosis during a recent roundtable hosted by U.S. Rep. Gus Bilirakis.
Bilirakis, who is a member of the Energy and Commerce subcommittee on Health, hosted a roundtable focusing on neurological conditions on May 6 at the Carrollwood Cultural Center.
Individually, each rare disease impacts less than 200,000 people. With such a small patient population, rare diseases hardly gain the attention that more widespread diseases such as cancer or heart disease garner.
When viewed collectively, however, 30 million Americans suffer from a rare disease. That's about 1 in 10 people. That is more people than the entire population of Florida, which has nearly 20 million residents.
Washington, D.C. – Representative Gus Bilirakis, member of the House Energy and Commerce Subcommittee on Health, today voted in favor of the 21st Century Cures draft legislation. This version includes a number of provisions authored or supported by Representative Bilirakis. The bill passed unanimously.
Washington, D.C. – Representative Gus Bilirakis, member of the House Energy and Commerce Subcommittee on Health, today questioned witnesses from the FDA and NIH during a 21st Century Cures hearing about repurposing drugs to treat rare diseases and combination products.
Washington, D.C. – Representative Gus Bilirakis, member of the Energy and Commerce Subcommittee on Health, today announced he will be hosting a Neurology Roundtable.
Washington, D.C. – Representative Gus Bilirakis, member of the House Energy and Commerce Subcommittee on Health, today released a statement on the second version of the 21st Century Cures draft legislation. This version includes a number of provisions authored or supported by Representative Bilirakis.
Washington, D.C. – Representative Gus Bilirakis, Vice-Chairman of the House Committee on Veterans' Affairs, today testified before the House Veterans' Affairs' Subcommittee on Health about his bill, the Creating Options for Veterans' Expedited Recovery (COVER) Act. Bilirakis' bipartisan legislation will establish a commission to examine VA's current therapy model and the potential benefits in incorporating complementary alternative therapies.
Why should people care about the repeal of the Sustainable Growth Rate (SGR) formula?
How would you describe this bill?
U.S. Rep. Gus Bilirakis, R-Fla., was honored by the U.S. Travel Association on Wednesday with its "Distinguished Travel Champion Award." Bilirakis was joined by U.S. Commerce Secretary Penny Prtitzker; U.S. Sen. John Thune, R-S.D.; U.S. Sen. Amy Klobuchar, D-Minn.; and U.S. Rep. Mike Quigley, D-Ill.
Washington, D.C. – Congressman Gus Bilirakis (R-FL), member of the Energy and Commerce Committee's Health Subcommittee, today vote in favor of H.R. 2, the Medicare Access and CHIP Reauthorization Act (MACRA), to repeal and replace the Sustainable Growth Rate (SGR) formula. The bill was passed by a vote of 392 to 37. The bill will replace the SGR with a Merit-Based Incentive Payment System – MIPS – which will pay doctors based on quality, not volume.